Wednesday, March 17, 2010

Update on Kodi and Spring Break for us...

Well, Kodi officially has her first round of chemo under her belt. TW and TJ thought that they were going to get to go home today, but the doctors want to see Kodi's pain under a little better control and want to see her eating better before they let her go home along w/ doing more education with TW and TJ on what to watch for when they get home so Friday is now the plan. They finally got the official results back from her bone scan today and along w/ the tumor in her abdomen and the one close to her spine, ALL of her bone marrow, and ALL of her hard bone is effected. Not great news, but when Kodi was diagnosed everybody knew we were in this for the long haul and that hasn't changed. Tuesday can't get here fast enough for me. It's going to be hard for me to make myself take a nap before I leave to head that way, but I will have to make myself so that I can stay awake for the drive down.

I finally caved this week and let Billy buy Rock Band. He and Jared May (one of the other coaches here) were about to pee their pants when they got home from Best Buy the other day they were so excited. I have to admit it's been pretty fun to play the last couple of days. Along w/ rocking out on Rock Band we have been finishing up laundry and yesterday we moved all of the furniture out of our room and cleaned the carpets in our room. Hopefully tomorrow we'll get the guest bedroom done.

I have to work tonight, so I guess I should get off of here and get ready. Hope everyone has a great St. Patrick's Day.

Pray that Kodi will have an appetite and that her pain would be better controlled as they get ready to go home. And say a prayer of thanks for all the people that have rallied around the Tutt's. Their house has been invaded and disinfected top to bottom and the grocery store there in Sanger is giving them free groceries for as long as they need them along w/ all the countless other things people have done for them.

Friday, March 12, 2010

What the heck?????

What a week it has been. Definitely ranks up there in the hardest weeks of my life...probably only second to the week that my dad was diagnosed w/ cancer. My sweet precious Kodi, who for all practical purposes is my niece, went to the doctor for what we thought was just a pneumonia and turned out to be a neuroblastoma. It's a fairly aggressive form of cancer and the tumors that she has are quite big. She started chemo last night at 11:00pm. It's not fair. She's only five years old. She's supposed to be enjoying soccer season and finishing up kindergarten, and instead, she's laying in a hospital bed having been put through the ringer this week. She is at Cook's in Ft. Worth and I'm so glad that she is in such a good place, however, it stinks that I have to be in Canyon and not there. I am going down on the 23rd to stay for a couple of days, and can't wait to see her and her sister. They were both flower girls in our wedding and mean the world to me. I can't believe that they are having to go through this. This is the type of thing that happens to complete strangers and then they become my friends as I take care of their child...it doesn't happen to people that I know and love. The hardest part has been having to wait for information. Being the nurse that I am, I want and need answers NOW, but have spent the week living in the unknown for the most part. Thankfully, we have an AMAZING God who is able to handle me being mad and throwing a fit and he's able to handle all the tears and the heartache. It was so nice to get a call from Tracy J (Kodi's mom) at 4:30 Thursday morning asking if I could get dry shampoo for them. Finally, something I can do to help. My next project is going to be to make her some rocking hospital gowns to wear. She's going to be the best dressed pt. Cook's has ever seen! :) Please be in prayer for her family. Her name is Kodi, her sister is Maegan, mom is Tracy Jane, and dad is Tracy Wayne. I'll keep information updated on here as much as I can. My prayer for them is that as the shock is wearing off that they would gain their footing and take off full force to attack this. Also, please be praying for the fundraisers that are being done in Kodi's name. Tracy and Tracy are driving back and forth from Sanger at least once a day, which is an hour or so one way. Between gas and eating out while in the hospital, any money that the fundraisers make is going to be a huge blessing, and I want them to be blessed above and beyond anything that any of us could imagine. I'll end with two of my favorite pictures of the girls and myself.